Saturday, April 4, 2009
10th treatment day
The last Philadelphia infusion has come to an end (boosters will start in NZ in a couple of weeks time). We are all pleased to be taking a break from it and looking forward to a sleep-in tomorrow. Not much change in pain response for Emma today. Unfortunately Dr Schwartzman could not be there today so we did not get to see him for a final consultation. Quite an emotional morning as Emma said her good-byes to hospital staff and infusion buddies. Nikki and I also had lengthy discussions with the parents of another patient who has had the full ketamine coma treatment in Germany. We really have learnt a lot more about RSD and what the options are by talking with other patients and carers and feel that we are very lucky to have been able to see Dr S whose waiting list is so long.
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Hope your remaining days are filled with good sightseeing and heaps of shopping before you have to catch the big bird home.
ReplyDeleteEnjoy the weekend. You all deserve a break from the hospital routine and a sleep in.No doubt you are counting the days till you return to Godzone to get back to your mates Emmy Lou. Sooo much to tell !!
ReplyDelete30deg here today.
LOL R & K xoxoxoxo
Isn't it great to talk to people that you can relate in these circumstances. Have a fab time looking round before you come back to us. Take care of you all.
ReplyDeleteLove Shaz n Bruce xxx
hey hun, you must be glad it's over!
ReplyDeletecant wait to see you back here in nz!
xoxox